thank you very much haha, well i gave it a practice try and i think it’s not for me anyway :( too complicated to sustain w my symptoms and i realized playing a game for 40 minutes is a long time! I was exhausted and ready to stop playing after 10 minutes already.

but it was fun to think about for a day

oh funnily enough i actually ended up doing that, it worked great and gave me a history i can now just copy and paste where needed. I should also send the report to another AI for a second opinion.

edit: I also mentioned in the new conversation to ask any questions needed before answering, it spat out 15 questions that managed to remove some possible links such as OCD.

It seems stuck on POTS that I mentioned in an earlier post, though there is some migraine history and orthostatic intolerance that could fit in too. I did a quick test lying to standing and heart rate jumped up 31 bpm after standing while blood pressure didn’t move, so now I definitely have to mention that to my doctor and get a migraine specialist too because this is textbook POTS. None of my doctors ever mentioned it as a possibility or seemed interested in the migraine history 🫠

thank you comrade, you’ve always commented under my posts. I’m looking at potential causes again with deepseek, it’s really good at following the boundaries of the conversation. Of course I only take it as things to bring to my doctor, but I think I now have to explore migraines more seriously and see a neurologist… due to past medical history as a child and teen that could show a link.

The funny thing is conversing with AI reminded me of this medical history that I had as a teen, that I had mostly forgotten. It sees links that doctors might miss because they process information differently, and while I’m still nowhere close to an actual final diagnosis (aside from idiopathic symptoms), at least I have some idea of where to look next.

A gut doctor also told me I had “constant” non-acidic reflux, which was diagnosed so I believe him, and that’s what I was exploring at first. I think now we can definitely consider it maybe a secondary condition but not the main driver of my symptoms. It just doesn’t fit with my triggers and other changes since the PE. We treated SIBO and some problems that I thought were caused by it are coming back.

The 1 million context is a godsend. aside from mixing up minor details in my history the first time I told it (like how my family has a history of thrombosis but my older siblings have never presented with it, it said “siblings have had thrombosis but asymptomatic” which is very minor as it got the gist of it but still funny), it can recall literally anything from the huge conversation I’ve been having with it where I just keep adding new info as I remember it.

Oh for sure. My parents only retired last year so there’s still some time (hopefully lol), but of course it puts the question of how to handle inheritance front and center when it happens. I’ll have to talk to them about the house (the one we live in) eventually, see what they plan for it and where the mortgage situation is at.

AI doesn’t come with any baggage towards the patient, it just has the symptoms and nothing else to make a call on. maybe that’s how diagnosis should be done, in a chat box lol. Doctor doesn’t get to see you, they only have a list. There’s a lot of judgment going on from the moment the patient walks in. Their age, their physical condition, the gender they present as (or lack thereof), etc. And of course how you talk to them and how they process that information - it’s very easy to mishear what someone says and understand something else.

And because of all the patients they see they start to forget things too. My dr obviously can’t remember all the stuff I told her about how my symptoms progressed over the past 2 years - but I do. she has it in a file but doesn’t necessarily have time to go through it every time, so sometimes I repeat stuff we’ve talked about before.

All I know is deepseek was right about the SIBO even across chats (new contexts) and long discussions lol. It just immediately honed in on it every time.

I think it really helped that my therapist at the time quickly said my symptoms were too strong to be explained by psychosomatic causes (eg anxiety). Because my doctor, as good as she might be, did ask about stress and anxiety early on. Of course they should ask about it, but sometimes they immediately lock in on it and dismiss you with it - that happened to me when I was 16, and lo and behold when I finally got the meds (simple PPIs it wasn’t even anything fancy), I got better.

Even when I had my PE, they said I was too young to have a PE but they would still test regardless - I’m thankful the doctor in question did that, because others may have just sent me home with antibiotics.

A doctor walks in all fucking proud “we’ve figured it out it looks like your appendix is inflamed and we need to do surgery.”

Exactly this. And they don’t think we know our own body or how we respond to illness, and in the meantime you’ve spent hours in pain when if they had just listened to the patient they would have known immediately.